So there I am, sitting at the quarterly Board of Trustees meeting for the Allegheny Chapter of the National M.S. Society. The Erie Chapter is part of the Allegheny umbrella and several of us from Erie (me being the newbie) were able to welcome the Board to our lovely shores for their July meeting.
I was unusually quiet, being the newbie, primarily just listening and taking in lots of information and conversation. My jaw hit the floor a couple of times as references were made to the myriad of services that NMSS will help provide to patients. I just didn’t know. I grabbed a former colleague (not literally) who is also part of the Erie Advisory Board while we were in the ladies room together. I belted out my surprise at all the NMSS will provide. If I didn’t know (and I’m a new volunteer on their advisory committee for Pete’s sake) maybe you don’t know either. Here’s how the NMSS can help! (This information references my chapter, but I’m guessing if you’re not in my region, yours will likely offer similar services).
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Home & Vehicle Adaptations |
The Allegheny District Chapter provides financial assistance for physician prescribed adaptations to the home and car to maximize independence. For details about the program, contact the NMSS. (i.e. if you need handrails installed in your bathtub or shower or your bathroom door widened to allow wheelchair access, or perhaps even an air conditioner)! |
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Medical Equipment |
The Allegheny District Chapter provides financial assistance for the purchase of physician prescribed durable medical equipment for persons un-insured or under-insured. An equipment Loan Closet program is also available to Chapter members. For details about the programs(s), contact the NMSS or visit Pittsburgh Wheelchair Exchange or Able Mobility to view a list of available loaner equipment. |
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R.E.A.C.H. |
R.E.A.C.H. is a grant-funded program that addresses the issue of abuse of people with MS through education, advocacy, support, safety planning and referrals in an effort to increase, maintain or restore safety and independence for people with MS. Learn More |
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Respite Care |
The Allegheny District Chapter provides assistance in arranging and financing temporary respite care for family care partners to give them a break from their care giving responsibilities. Respite can be provided in-home or in a long-term care facility. For details about the program, contact the NMSS |
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Scholarships |
Scholarships are available to high school seniors who have been diagnosed with MS, high school seniors who have a parent with MS, or an adult with MS who has never enrolled in an accredited post-secondary institution. Visit our Scholarship page or e mail Colleen for more information. |
Kim,
I can attest to this, the Maine chapter of the MS Society helped me purchase an air conditioner two years ago. I called them and they sent an application, they advised me to go buy the AC then send them the receipt for a refund.
Almost 2 weeks later I recieved a check for the total amout I paid including taxes.
I am forever grateful
You can also get help with therapies like horseback riding, swimming etc. I am looking to aquire help to attend a retreat in the fall (keep your fingers crossed for me!)
WHOA! That is quite a bit of offerings!
Kim,
I live in St. Louis, Missouri, and my husband has PPMS. There are services that the MS Society and the State provide, but you have to be near the poverty level before you can qualify for them.
My husband has not been able to leave the house for three years because we don’t have an accessible van, and we cannot afford one.
Our son is 14, and we have chosen to send him to private (Catholic) school because the city schools are so very bad. This leaves us with practically no extra money, so even though some people may consider us middle class we really have very little.
My husband needs home health care, but this service is not covered under my insurance. Thank goodness my very kind and generous father-in-law is paying for it.
Are the services your MS society provides also based on a near poverty level of qualification?
Scholarships eh? That I must look into. Thanks for the info.
Kim,
Your readers should learn to use the websites of their local MS chapter offices. Then they can view what is available in their area.
To find their local MS Chapter office, they can go to the main site: http://www.nmss.org and then click the Find A Chapter link .
Also – If any of your readers has a primary language other than english, on my website, they can now view MS Facts in many different languages. Maybe theirs is there as well.
Best Regards,
Stuart Schlossman (stuartschlossman@bellsouth.net)
My local chapter is very strange. They seem to pick and choose who they help…myelf and others have been let down so any times…