I attended a health care summit a number of days ago, where those in attendance learned of the new bi-partisan effort at reforming health care: The Healthy Americans Act. More than 40 members of the House and Senate have already given support to the bill which will be up for legislation in early 2009. Senator [...]
Archive for September, 2008
The Healthy Americans Act
Posted in Activism, Life with M.S., tagged Healthy Americans Act, M.S., Multiple sclerosis on September 29, 2008 | 7 Comments »
Where Have All the Stories Gone?
Posted in Life with M.S., tagged M.S., Multiple sclerosis on September 27, 2008 | 4 Comments »
A gal really doesn’t know how much she misses something until it is gone – or at least is on hiatus. I warned everyone (and myself in a subconscious sort of way) that my writing may wane as I balance my new job with my new semester of online writing students and oh yes, my [...]
A Tiny, Little Pill: Research Continues with Positive Results
Posted in Life with M.S., Treatments, tagged M.S., Multiple sclerosis on September 24, 2008 | 5 Comments »
Acorda Therapeutics Presents Additional Data from Second Positive Phase 3 Study of Fampridine-SR at World Congress on Treatment and Research in Multiple Sclerosis
- Similar Response Rates Seen Across Different MS Subtypes and Background Therapies -
HAWTHORNE, N.Y.–(BUSINESS WIRE)–Acorda Therapeutics, Inc. (NASDAQ: ACOR – News) today announced additional data from its second Phase 3 clinical trial of [...]
Looking for Trouble…Or Not
Posted in Life with M.S., tagged M.S., Multiple sclerosis on September 21, 2008 | 5 Comments »
I was headed to lunch on Friday, my first, true out of the office for 40 minutes lunch, in the last two weeks. One of my co-workers, someone all too familiar with a life with M.S., convinced me to take a break and have lunch with him. On the drive over to one of the [...]
Talk Like a Pirate Day
Posted in Life with M.S., Symptoms, tagged diplopia, M.S., Multiple sclerosis on September 18, 2008 | 5 Comments »
All Hope Abandon, Ye Who Enter Here!
One of my biggest fears related to having M.S. is to lose my vision again. Let me clarify. I never truly ‘lost’ my vision, rather I suffered from diplopia, a very scary symptom of M.S. where one’s vision is severely ‘interrupted’ – I spent weeks seeing double, unable to [...]
The Stem Cell Debate: Will Your Vote Affect MS Treatment?
Posted in Life with M.S., Treatments, tagged M.S., Multiple sclerosis on September 17, 2008 | 1 Comment »
With war, the housing crisis and global warming on the front page of every newspaper, where does stem cell and MS treatment research sit on the list of national priorities this election season?
Tune in September 25 as HealthTalk experts speak with MS community leaders about stem cell transplants as an MS treatment, the status of [...]
A Lump, A Clump, A Puddle
Posted in Life with M.S., Symptoms, tagged M.S., Multiple sclerosis on September 15, 2008 | 1 Comment »
Into the land of “It’s that…that…that…thing”, the never-ending saga of life with M.S., or as many others tell me, just life in general as aging continues.
I’ve written about my lovely gazebo on my deck at home. On a recent Sunday, one of our favorite couples and their kids spent the afternoon lazing around with [...]
Farewell, Soul Sister
Posted in Other Inspirations, tagged glioblastoma multiforme, M.S., Multiple sclerosis on September 12, 2008 | 6 Comments »
More than fourteen months ago, my employee and now dear friend, Cathy Higgins was diagnosed with Glioblastoma Multiforme. Many regular readers are now familiar with Cathy’s Journey; her heroic battle with brain cancer. If you haven’t ‘met’ Cathy here in the Sunshine before, take a moment to learn about her journey HERE on her family’s [...]
If You Would Have Asked Me…
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on September 12, 2008 | 7 Comments »
…eleven years ago how I’d be spending my wedding anniversary in 2008, I never would have guessed that I would have traded in my ‘Tom’ for my ‘George’ instead. Yes, today is my wedding anniversary and yes, this afternoon I shall spend a fair amount of time with ‘George’ my IV pole instead of the [...]
Good is the Enemy of Great
Posted in Other Inspirations, tagged M.S., Multiple sclerosis on September 9, 2008 | 5 Comments »
I’ve been reading two stellar books this past month: “Built to Last” (2002, Collins & Porras) and “Good to Great” (2001, Collins). Here is the opening paragraph of Good to Great:
Good is the enemy of great. And that is one of the key reasons why we have so little that becomes great. We don’t [...]
