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Archive for December, 2008

I learned yesterday that once a person (or at least this person) has reached a stage of acceptance (of whatever it is that needs accepting in her life) doesn’t mean that fear (of whatever has been accepted) just disappears.  I actually thought yesterday, on my lengthy commute home: Can you accept that you have M.S. [...]

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Last week I posted a Tysabri-related update indicating another Tysabri user (this time in the United States) has died from PML complications from taking the drug.   While each death is scary and unfortunate, it’s important to note that we’re still well under the manufacturer’s “predictions” that 1:1,000 patients will develop PML after taking Tysabri.  To [...]

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As the end of 2008 rapidly approaches and as today marks 13 months since being diagnosed with Multiple Sclerosis, I’ve been reflecting as promised earlier in the week.  This reflection leads to one statement:  Only one major thing happened in my life in the last 12-plus months.  Only one thing.
Regular readers of Sunshine and [...]

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By: Kerri Fabrizio (age 16)
 
 
I grew up with my parents being divorced. Most kids have trouble dealing with divorced parents but I was too young to even know what was going on. Thinking back, I believe that it happened for a reason. I was blessed with four great parents that give me all the love [...]

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Gotta Make the Time

It’s two days before Christmas and I’ve been remiss in sending my Christmas wishes — or any Sunshine spirit–  along to our thousands of readers.  In fact, “remiss” seems to be the word of the month for me; life’s been crazy and hectic and unfortunately my writing is only one of the things falling by [...]

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Biogen Says Tysabri Patient With Brain Illness Died (Update3)

By Elizabeth Lopatto

Dec. 19 (Bloomberg) — A multiple sclerosis patient who developed a severe brain infection after taking Biogen Idec Inc. and Elan Corp.’s Tysabri, the fourth case reported in five months, has died, according to Biogen.
Cambridge, Massachusetts-based Biogen was informed of the American woman’s death [...]

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Fourth 2008 PML Case Linked to Tysabri
December 16, 2008 — 12:12pm ET | By Tracy Staton

Another Tysabri patient has contracted the potentially fatal brain infection PML, the fourth case this year. Biogen Idec and its Tysabri partner, Elan, notified regulators of the new diagnosis yesterday. The patient, located in Europe, had been taking Tysabri for [...]

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Here’s a great animation about M.S. and how demyelination occurs.
http://www.youtube.com/watch?v=qgySDmRRzxY
 

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Teams Funded by the National MS Society Report on Key Enzymes Related to MS Progression and Nervous System Repair Two teams of researchers funded by the National MS Society have reported findings on nerve tissue injury and repair that add important information needed to stop MS progression and develop nervous system repair strategies. Isobel Scarisbrick, [...]

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Considering Tattoos?

The internal debate of whether to ink or not to ink continued to rattle around in my noggin until an article from NMSS  helped me solidify my decision.  My thinking twice has ended.
Thinking Twice about Tattoos

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