I learned yesterday that once a person (or at least this person) has reached a stage of acceptance (of whatever it is that needs accepting in her life) doesn’t mean that fear (of whatever has been accepted) just disappears. I actually thought yesterday, on my lengthy commute home: Can you accept that you have M.S. [...]
Archive for December, 2008
Acceptance: Served Up with a Hefty Side of Fear
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on December 31, 2008 | 4 Comments »
Why So Secretive?
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, PML, Tysabri on December 30, 2008 | 8 Comments »
Last week I posted a Tysabri-related update indicating another Tysabri user (this time in the United States) has died from PML complications from taking the drug. While each death is scary and unfortunate, it’s important to note that we’re still well under the manufacturer’s “predictions” that 1:1,000 patients will develop PML after taking Tysabri. To [...]
Acceptance Arrives when the Novelty Wears Off
Posted in I.A.R., Life with M.S., tagged M.S., Multiple sclerosis on December 28, 2008 | 5 Comments »
As the end of 2008 rapidly approaches and as today marks 13 months since being diagnosed with Multiple Sclerosis, I’ve been reflecting as promised earlier in the week. This reflection leads to one statement: Only one major thing happened in my life in the last 12-plus months. Only one thing.
Regular readers of Sunshine and [...]
A Tribute and Special Holiday Present
Posted in Other Inspirations, tagged M.S., Multiple sclerosis on December 24, 2008 | 9 Comments »
By: Kerri Fabrizio (age 16)
I grew up with my parents being divorced. Most kids have trouble dealing with divorced parents but I was too young to even know what was going on. Thinking back, I believe that it happened for a reason. I was blessed with four great parents that give me all the love [...]
Gotta Make the Time
Posted in Life with M.S. on December 23, 2008 | 5 Comments »
It’s two days before Christmas and I’ve been remiss in sending my Christmas wishes — or any Sunshine spirit– along to our thousands of readers. In fact, “remiss” seems to be the word of the month for me; life’s been crazy and hectic and unfortunately my writing is only one of the things falling by [...]
M.S. Patient with PML has Died
Posted in Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, PML on December 19, 2008 | 2 Comments »
Biogen Says Tysabri Patient With Brain Illness Died (Update3)
By Elizabeth Lopatto
Dec. 19 (Bloomberg) — A multiple sclerosis patient who developed a severe brain infection after taking Biogen Idec Inc. and Elan Corp.’s Tysabri, the fourth case reported in five months, has died, according to Biogen.
Cambridge, Massachusetts-based Biogen was informed of the American woman’s death [...]
Over 35,000 Remain Steadfast Despite PML News
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on December 16, 2008 | 1 Comment »
Fourth 2008 PML Case Linked to Tysabri
December 16, 2008 — 12:12pm ET | By Tracy Staton
Another Tysabri patient has contracted the potentially fatal brain infection PML, the fourth case this year. Biogen Idec and its Tysabri partner, Elan, notified regulators of the new diagnosis yesterday. The patient, located in Europe, had been taking Tysabri for [...]
You Oughta Be in Pictures
Posted in Causes of M.S., tagged M.S., Multiple sclerosis on December 15, 2008 | 2 Comments »
Here’s a great animation about M.S. and how demyelination occurs.
http://www.youtube.com/watch?v=qgySDmRRzxY
Enzymes May Be Key to Myelin Repair
Posted in Life with M.S., tagged M.S., Multiple sclerosis, Myelin on December 10, 2008 | 3 Comments »
Teams Funded by the National MS Society Report on Key Enzymes Related to MS Progression and Nervous System Repair Two teams of researchers funded by the National MS Society have reported findings on nerve tissue injury and repair that add important information needed to stop MS progression and develop nervous system repair strategies. Isobel Scarisbrick, [...]
Considering Tattoos?
Posted in Life with M.S., tagged M.S., Multiple sclerosis on December 7, 2008 | 7 Comments »
The internal debate of whether to ink or not to ink continued to rattle around in my noggin until an article from NMSS helped me solidify my decision. My thinking twice has ended.
Thinking Twice about Tattoos
