When I started my new job months and months ago, I posted an update here in the Sunshine letting readers know that my days of daily blog articles would be coming to an end. There just wasn’t a way to do it all. I’ve written about missing writing. I’ve labored over not being able to [...]
Archive for May, 2009
Suffering Over Status Updates
Posted in Life with M.S., tagged M.S., Multiple sclerosis on May 31, 2009 | 7 Comments »
The Right to Petition
Posted in Activism, Life with M.S., tagged M.S., Multiple sclerosis on May 24, 2009 | 1 Comment »
By Contributing Writer Needles ‘n Pens
As we enter this patriotic season, opening with the solemnity of remembering those who gave their lives to protect our liberties, and continuing on with the public patriotism of Flag Day on the 14th of June, and the carnivals of explosive color exuberantly celebrating Independence Day on the 4th of [...]
You Can Contribute to the Guidelines for Stem Cell Research
Posted in Activism, Life with M.S., tagged embryonic stem cell research, M.S., Multiple sclerosis on May 18, 2009 | Leave a Comment »
Despite having an un-curable and disabling disease, embryonic stem cell research continues to be a hot topic within my extended family. That’s why I’m sharing this information (provided by the National M.S. Society). You can make your voice heard about guidelines for stem cell research! The NMSS provided suggested verbiage for your comments, but I’ve [...]
M.S. is in the House!
Posted in Life with M.S., tagged House, M.S., Multiple sclerosis on May 11, 2009 | 5 Comments »
I was getting caught up on DVR’d episodes of one of my favorite shows, House, over the weekend. What a better way to recover from a Tysabri infusion. I was watching the episode called “Saviors” and as they started to describe the patient’s symptoms, I rolled my eyes and said, “He’s going to have them [...]
Laughing through Lucky Thirteen
Posted in Life with M.S., Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on May 10, 2009 | 2 Comments »
It’s been thirteen months of Tysabri infusions and yet the hubby and I still have the same conversation in the two days following each. I walk around the house saying that I think this particular infusion hit me harder than the others.
The hubby reminds me that I say the same phrase after each. I reply, [...]
Groundbreaking Genetics Study!
Posted in Activism, Causes of M.S., tagged M.S., Multiple sclerosis on May 8, 2009 | 1 Comment »
Research News: Genetics Study to Launch — Research Moving Forward During Challenging Times
We are facing challenging economic times in this country and around the globe, but we are also in an era of unprecedented progress in MS research. The Society continues to receive increasing numbers of meritorious scientific projects, each holding particular promise for finding important new [...]
I Am Myelin Man!
Posted in Causes of M.S., tagged M.S., Multiple sclerosis, Myselin on May 5, 2009 | 2 Comments »
Wow, now that’s a name I didn’t expect to earn in this lifetime – Myelin Man. How does one become the M.M.? Educate yourself about myelin by taking this online quiz!! (Just click on the link).
Apparently I did so well on the quiz, I was told: You know everything there is to know about myelin. Seriously. [...]
Advocate for Yourself:Stay Informed
Posted in Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on May 4, 2009 | Leave a Comment »
STAY INFORMED ABOUT MULTIPLE SCLEROSIS AND HEAR PERSONAL
STORIES FROM OTHER PEOPLE WITH MS
If you are looking to learn more about MS therapies, the TYSABRI Teleconference and Webinar series may help you make a more informed decision.
Teleconference Series
Dial in to hear TYSABRI patients share their personal experiences—from the impact that TYSABRI has had on their lives [...]
How Do You “Get” M.S.?
Posted in Causes of M.S., tagged M.S., Multiple sclerosis on May 1, 2009 | 3 Comments »
What triggers MS, and when? While most develop symptoms in adulthood, many scientists believe that people whose genes make them susceptible to MS encounter the unknown trigger years before symptoms occur, but no one knows when. Is it in the teen years? Before birth?
A recent international workshop held in New York City and convened by [...]
