I don’t want to end up using a cane or rolling around in a wheelchair. If that’s my destiny, I will certainly accept it, but I won’t go down without a fight. In addition to my fortitude on the issue of mobility, I’m enrolled in a new lifestyle improvement program at work called “HealthQuest.” It’s a self-reporting summer program, whereby participants earn points towards various rewards for a variety of healthy lifestyle choices. I can earn points for taking the stairs instead of the elevator, walking instead of driving, exercising (of course), eating right, stepping away from my desk to de-stress, and even for making someone’s day. Both motivating factors are excellent opportunities to get out of my office, move my legs, and strengthen my body.
That’s if I don’t die from trying to get healthy first.
A week or so ago, just days before my delayed infusion of Tysabri, a colleague and I decided to walk all the way around campus (just a mere 585 acres) to check out our campus beautification project. I almost didn’t make it back to my office – red-faced, struggling to breathe and to move my legs — and I was in sorry shape the day after. My colleague told another that she was worried she killed me on that walk. Nah, the tightrope of imminent death is all apparently part of getting healthy. An oxymoron at its finest!
I try to walk somewhere every day, yet it’s still just as much of a challenge at week eight of the program as it was at week one. Of course, persons will M.S. will remind me that the 80-degree weather probably isn’t helping my cause any.
At home, I try to spend 15 minutes – at least three or four nights a week – riding my XL Glider. Any kind of movement is good movement, my doctors tell me. It’s all supposed to be fighting off that dreaded muscle atrophy. Add in the fruits and vegetables I’m trying to inhale, the giant glasses of water, and all that positive thinking and one might start to think I’m a reformed woman.
I write this as I’m about to lace up my sneakers, head out in the sticky and humid air, to walk to a meeting and then on to a healthy lunch. I’ll return wobbly-legged to the office, earning 5 or 6 points in the process and hopefully even more points with the mobility gods.

Sticky and humid up there too? I hate that kind of weather and invariably use it as an excuse to avoid walking. I have osteoporosis, so really, why am I allowing myself to get away with not exercising? I admire your spunk.
One foot in frontof the other! Congrats on your commitment to activity and a healthy lifestyle. Maybe next time you might want to build up to such a huge walk. Or not….just my two cents.
Lazy Julie
Life kills us, not exercise! I think of life as a car, in some ways. For example, a car has only has so many rotations in its life before it’s capootskie. I worked myself crazy from 15 to 38 (when MS knee-capped me)and since, I have discovered a completely different, healthier life.
I weigh more than I did before MS, in fact I went waaaay up the scales directly after and have since (8 years later) come down to a healthier weight. I am still a bit overwieght but mostly over-happy with my life post-crazy-career-woman.
More exercise will be great, but until my luverly Hushbum comes home from work to stay, I don’t have the confidence to go for extended walks alone and everyone else works. So, for now, I am happy to be a bit overweight and stick to my gardening.
I wouldn’t want to go back to the crazy workaholic life no matter what. That’s all about ego and making work be who we are instead of facing who we can be and living who we really are. The serenity and peace of my new way of being is an incredibly healthy place that I am grateful for each and every day.
Rusty
It’s been really cold and rainy here in Maine for almost the entire the month of June, as much as I’d like to see the sun I know the really hot weather will follow, and the hot muggy weather just numbs me.
So, that means that any activities will be saved for early mornings and early evenings.
Last year Biogen sent me a gift of a scarf that you submerge in water, squeeze it and it’s to be worn around the neck or wrist for cooling, and it stays cool for a very long time. I’m sure if you contacted the MS Society in your area they could help you with info on how to get one.
Remember to pace yourself Kim!
Hi Kim, I guess my MS has gotten the better of my cognitive skills today, but I cannot find your email address even though I do remember that you share one somewhere on these pages.
I would like to give you some important MS info about a new paradigm regarding the mechanism of how MS works. Hold on, because you and your readers are in for quite a ride . . . .
In short, this new model of MS is CCSVI (Chronic Cerebrospinal Venous Insufficiency)
Venous stenosis (narrowed/twisted/bent veins caused by a million possible reasons, such as smoking, genetics, accidents, etc.) of the jugular and azygos veins in the brain causes MS lesions because the resulting reflux (backflow) of deoxygenated blood does not properly drain from the brain and neck (cervical spine) — three resulting problems are a lack of oxygen, poor perfusion, and leaking veins (accounts for spinal lesions).
The CURE to halt MS progression is to straighten/widen/strengthen, as much as possible, the affected vein(s) using a transfemoral catheter for stent placement inside the vein(s) in the brain and neck.
The tests that show stenosis are the MRI and MRV (venography), and an ultrasound Doppler study — these are noninvasive. The next test, if indicated by the first noninvasive tests, is an angiogram which is invasive (transfemoral catheter to ’see’ inside the veins).
Dr. Zamboni has just published a wonderful study about his success with CCSVI in the Journal of Neurology, Neurosurgery and Psychiatry, and Dr. Dake at Stanford (yes, Stanford!) is performing this testing and stent surgery for patients all over the country, but my local neuro is willing to coordinate my testing and surgery (if indicated) locally (upstate NY).
IMPORTANT: This surgery will NOT heal lesions or repair neurons, axons, myelin or nerves that are already injured from MS.
I implore you to study the information at the following links:
http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=19060024#id379895
http://www.thisisms.com/forum-40.html
http://www.thisisms.com/ftopict-7374.html
Best of luck,
~HappyPoet
Stuff in the news locally:
Cheers to bikers, jeers to motorists
Cheers to the hundreds of cyclists who participated in the National Multiple Sclerosis Society’s “Escape to the Lake” 150-mile bike ride on June 6 and 7. Their efforts are to be commended as they raised money and awareness so that one day medical professionals may be able alleviate the devastating effects of this disease on the millions of people who are affected.
These cyclists not only commit themselves to the ride itself, they also embark on an extensive campaign to raise money within their communities. It is a yearlong commitment for these participants.
Jeers are given to the Edinboro automobile drivers who used inappropriate four-letter words to express their frustration to the parade of cyclists who were making their way out of town on the morning of June 7. This was a family event and those who participated did not deserve that kind of dishonorable treatment.
Krista Lamb|Erie
Now for my soapbox… Take up yoga. Everybody is doing it. You know you’ll love it. If you can’t go to class, get a DVD. If you make it to Denver I’ll give you a free private lesson.
Seriously, good for you with all the healthy eating and excercise. I’m trying to do the same.