Posted in Activism, Life with M.S., tagged blood donation, M.S., Multiple sclerosis on June 25, 2008 | 3 Comments »
By Contributing Writer
Needles ‘n Pens
The age range of blood donors at a Red Cross community drive is always heartening … last fall, at a local school, I saw more than a dozen high school seniors lined up for their first donation … with much bravado, and many follow-up stories at the snack table, they began [...]
Posted in Activism, Life with M.S., tagged brain tissue donation, M.S., Multiples Sclerosis on June 2, 2008 | No Comments »
Despite the fact that the hubby indicated the Tissue Repository in Chicago would respond with “We’re Good!” when I called to offer them by brain tissue, the Italian Stallion was wrong. They do want my brain – well, at least my brain tissue. Here’s what I’ve learned about brain tissue donation.
When they say there’s [...]
Posted in Activism, tagged M.S., Multiple sclerosis on May 18, 2008 | No Comments »
Ooh, it’s chilly and rainy outside this spring morning, but that’s not stopping Team Sunshine (although I’ll be turning my face up to the clouds, begging for a few rays to shine down upon us). Today we celebrate Walk M.S. 2008 —one of the hundreds and hundreds of M.S. Walks (and upcoming Bike Tours) scheduled [...]
Posted in Activism, Life with M.S., tagged brain tissue donation, M.S., Multiple sclerosis, organ donation on May 13, 2008 | 7 Comments »
I read an interesting article in “Momentum” this month, about donating my brain tissue to science. I’m already an organ donor and have both a living and end of life will. The hubby knows what I want and what I don’t want should something disastrous happen to me.
The other evening we discussed my newest [...]
Posted in Activism, Life with M.S., tagged M.S., Multiple sclerosis on May 6, 2008 | 8 Comments »
Note to readers and to web-lurking, criminal-seeking DEA agents: This is in no way meant to be a solicitation for prescription drugs, nor an attempt to traffic my unused meds to another M.S. patient using the Internet. This is merely an opinion piece on the lack of a reputable system for recycling safe and unused [...]
Posted in Activism, Life with M.S. on February 26, 2008 | No Comments »
As we grow closer to the close of the primaries (mine here in Pennsylvania is still two months away) and with the general election looming, the topic of health care is right on the top of my mind. There are so many issues, so many worries for the average American. My top three are health [...]
Posted in Activism, Life with M.S., tagged S.S.A. Disability Chronic Illness Insurance Amendment; on February 18, 2008 | 5 Comments »
I’m not going to tell you how to apply for – and receive – Social Security Disability Insurance (SSDI) benefits. I haven’t applied and I likely won’t for quite a long time (numb fingers and toes crossed). Frankly, I’m freaked out by the whole process; by the idea that I’d have to quit my job [...]
Posted in Activism, Life with M.S., tagged Campaign Reform, Election, M.S., Multiple sclerosis on February 2, 2008 | 5 Comments »
Yesterday morning while driving to work, I was listening to Morning Edition on NPR. One of the stories mentioned the $32 million Barack Obama raised — in the month of January alone — for his campaign for President. That’s more than one million dollars a day during just the month of January. Don’t get me [...]
Posted in Activism, Life with M.S., Treatments, tagged M.S., Multiple sclerosis on January 20, 2008 | 6 Comments »
Here’s what $7,000 looks like to me and to others with M.S.
This isn’t my story. I didn’t write it. Someone much more powerful, much more educated about Big Pharma, the health care industry, and public policy wrote this story.
This picture and the story that goes with it impacted me.
It made my stomach turn.
It made me [...]
Posted in Activism, tagged M.S., Multiple sclerosis on January 18, 2008 | No Comments »
Click here to learn about a way to celebrate Valentine’s Day differently this year!
