Posted in My Support Network, tagged Cancer, M.S., Multiple sclerosis on April 15, 2008 | 4 Comments »
By now many of you know that I’m not only living a life with Multiple Sclerosis, I’m also a ten-year cancer survivor. The topic of cancer, particularly the battle against the disease, is near and dear to my heart.
So, whatcha doing tonight at 7:30 (EST)? DVR those favorite television shows, pull a comfy chair [...]
Posted in I.A.R., Life with M.S., My Support Network, tagged M.S., Multiple sclerosis on January 18, 2008 | 20 Comments »
I wrote awhile back that I accepted the fact that I have M.S. I also wrote that I didn’t think I’d truly accept the magnitude of this life-altering disease, fully, for quite some time. Yesterday, in my attempt at baby-stepping towards reinvention, I took a few paces towards acceptance. It didn’t come that easily though. [...]
Posted in Life with M.S., My Support Network, Treatments, tagged M.S., Multiple sclerosis on December 26, 2007 | 6 Comments »
Here’s a story about three, great kids (check that — three, great, young adults). This story is about my step-kids; more specifically about something amazing they did for me this holiday season.
Joe, who will turn 20 in a few weeks, is a sophomore at Green Mountain College in Vermont where he’s obtaining a bachelor’s degree [...]
Posted in Activism, My Support Network, Other Inspirations on December 17, 2007 | 9 Comments »
I made a new friend yesterday! This is one of the many blessings of having M.S., I’m meeting new and wonderful people. This new friend is James S. Huggins. He has a great M.S. website, full of resources, links to information, reviews of M.S.-related books. And, no, he doesn’t have M.S.! I’m not going to [...]
Posted in My Support Network, Other Inspirations, tagged GBM, glioblastoma multiforme, M.S., Multiple sclerosis on December 7, 2007 | No Comments »
There’s a little boy who lives here in Erie County. His name is Jack. He is three-years-old and he’s fighting for his life. Jack Sunberg is battling Glioblastoma Multiforme (GBM)– the worst brain cancer known to mankind.
GBM is the devil and I know the devil firsthand. My dear friend and former colleague, Cathy Higgins, has [...]
Posted in My Support Network on December 3, 2007 | No Comments »
Just a quick note here today, on my first day back to work since my diagnosis. What a homecoming! The photo shown here is of my office door, where my team-mates decorated it with the lyrics to “You are my Sunshine.” They’ve also taken up performing like the Brady Bunch with the famous hit “Sunshine [...]
Posted in My Support Network on December 1, 2007 | No Comments »
And the Rest of My World
Tommy, I’ve thanked you in private, but the world needs to know how wonderful you are. Ladies, the true test of a good husband is one who packs the perfect hospital bag. The “right” kind of underwear, with a matching number of socks. The good, in case visitors pop over, [...]
Posted in My Support Network on December 1, 2007 | 1 Comment »
Hotel Hamot!
The list is long, but each and every thank you is important. We’ll start with Dr. Ken Patton and his crack team of ER doctors, nurses, EKG-ers, CAT scanners, and gurney transporters (ok, I made that title up because I don’t know what they’re called). Dr. Patton, your team got me through the first [...]
Posted in My Support Network on December 1, 2007 | No Comments »
This is an email I shared with friends and family earlier this week that pretty much sums up the story….
Hi everyone!
You’re receiving this update because somewhere along the way you’ve asked me to keep you posted on my progress. If the updates are annoying or jamming in boxes, just tell me. I hear that people [...]
