Posted in Life with M.S., Treatments, tagged M.S., Multiple sclerosis on July 3, 2008 | 1 Comment »
ScienceDaily (July 1, 200 — Animal studies by University of Michigan scientists suggest that people who experience the same clinical signs of multiple sclerosis (MS) may have different forms of the disease that require different kinds of treatment.
Read this interesting article!
Best Treatment For Multiple Sclerosis May Depend On Disease Subtype
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on June 27, 2008 | 4 Comments »
Since I started writing about my Tysabri Travels, I’ve received a number of emails with questions about the drug and its efficacy and side effects. When I visit a number of M.S. discussion boards, one in almost every ten postings is about Tysabri. Folks in my personal life also ask about the drug, how it [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on June 23, 2008 | 2 Comments »
We gotta make this work. This is our dream drug. Our options are really limited. We’ve invested so much research and hope in this direction.
It’s been three days since my first infusion of Tysabri and the hubby and I continue to keep a close watch on both my physical and cognitive conditions – doctor’s [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on June 21, 2008 | 3 Comments »
Trains and railroads have been used as metaphors for decades, especially in music. The Grateful Dead’s songs with references to trains number in the double digits. Trains and railroads represent journeys, leaving sadness behind, seeking greener pastures, and even deliverance. (Why is it I can’t use that word – deliverance – without conjuring up thoughts [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on June 20, 2008 | 7 Comments »
The time has arrived, our tickets are purchased, and now all that’s left is for family and friends to wave to us and wish us luck as the train leaves the station. Today is Tysabri infusion number one for the Ty-Ty Sisterhood!
While I’m excited that today has finally arrived and I’m hopeful for the [...]
Posted in Life with M.S., Treatments, tagged M.S., Multiple sclerosis, Neurological Exam on June 18, 2008 | No Comments »
What happens at a Neurological Exam? What types of tests take place? Sometimes these tests are used to provide a baseline; many times they are used to determine eligibility for SSDI. Here’s the best reference tool (online) I’ve been able to locate to date. I hope it’s helpful!
http://www.neuroexam.com/
Countdown to Tysabri: Two More Days
Posted in Life with M.S., Treatments, tagged M.S., Multiple sclerosis on June 10, 2008 | 2 Comments »
By contributing writer Needles ‘n Pens
Freedom Trial: Oral Drug (www.msclinicaltrials.com )
I guess I’m too old to volunteer for this trial …funny thing, age. When I had years of symptoms, starting in my thirties, I had no time to track them down (busy with children and working and elder care). Some things are just not meant [...]
Posted in Life with M.S., Treatments, tagged M.S., Multiple sclerosis, Myelin on June 4, 2008 | No Comments »
The scientists at the Myelin Repair Foundation believe that, yes, myelin can and someday will be repaired. It’s called re-myelinating and the promise is exciting.
The objective of the Foundation’s multiple sclerosis research is to gain a deeper understanding of the natural process of myelination and how multiple sclerosis disrupts it. Through research scientists are [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on May 29, 2008 | No Comments »
I’ve never ridden on a train, unless the subway counts, or perhaps the train at the Zoo. I’m assuming that trains have “stops” just like subways. For weeks, I’ve been pulling on an imaginary cord just above my head (“ding, ding”), trying to get my personal train to make its all important first stop – [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on May 16, 2008 | 5 Comments »
Toot! Toot! All Aboard. It’s time to jump on the Ty-Train. And here begins Sunshine’s journey with Tysabri – the drug we’re hoping and praying begins to alleviate the relapsing part of my Relapsing-Remitting M.S., decreases potential disability, and hopefully protects my noggin from future attack across that all important blood-brain barrier.
It’s quite a [...]
