There’s a Reason We’re Supposed to Do It Every 28 Days

          People often ask me if I feel “better” now that I’m on Tysabri. Since I’m an official patient-advocate for Biogen Idec, the manufacturer of Tysabri, I’m completely honest and sincere with my response, but it’s normally the same response given each and every time.
          Tysabri isn’t designed to cure symptoms. It’s designed to stop [...]

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Laughing through Lucky Thirteen

It’s been thirteen months of Tysabri infusions and yet the hubby and I still have the same conversation in the two days following each. I walk around the house saying that I think this particular infusion hit me harder than the others.
The hubby reminds me that I say the same phrase after each. I reply, [...]

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Advocate for Yourself:Stay Informed

STAY INFORMED ABOUT MULTIPLE SCLEROSIS AND HEAR PERSONAL
STORIES FROM OTHER PEOPLE WITH MS
 
If you are looking to learn more about MS therapies, the TYSABRI Teleconference and Webinar series may help you make a more informed decision.
Teleconference Series
Dial in to hear TYSABRI patients share their personal experiences—from the impact that TYSABRI has had on their lives [...]

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Tripping My Way to a One-Year Milestone

Yesterday marked month 12 of my Tysabri Travels and I celebrated with a few of my nurses and a cake at the infusion center. Only a small contingent of the staff was on hand due to the Easter holiday, so I’m hoping they keep their promise and freeze some of the cake for the other [...]

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Has It Really Been That Long?

As I sit on the couch this morning, still recovering from my date with George (my IV pole), I’m marveling at the fact that it’s been eleven months since my first Tysabri infusion.  I actually had to use all of my fingers and one toe to count backwards to be sure.  I was accurate in [...]

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Make my day: Improving your quality of life with MS

I bet a little quality of life improvement is something we all could use, no?  If so, I hope you’ll join me as I attend (and serve as a patient-speaker) at this upcoming event in Erie, PA.  Registration information is below!

Location:

Ambassador Banquet & Conference Center

City & State:

Erie, PA

Date & Time:

04/04/2009
9:30 AM to 11:30 AM

Information:

We welcome [...]

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Tysabri Study: Patients Disease-Free for Two Years

CAMBRIDGE, Mass. & DUBLIN–(BUSINESS WIRE)–Biogen Idec (NASDAQ: BIIB – News) and Elan Corporation, plc (NYSE: ELN – News) today announced five-times as many multiple sclerosis (MS) patients taking TYSABRI® (natalizumab) were free from disease activity versus placebo in the overall patient population. Results from this retrospective analysis showed that two years after beginning treatment with [...]

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Upcoming Tysabri Teleconferences

 

HEAR PERSONAL STORIES
FROM OTHER PEOPLE WITH MS
If you are looking to learn more about MS therapies, the TYSABRI Teleconference Series may help you make a more informed decision.
Teleconferences are held every month.Dial in to hear a panel of TYSABRI patients share their personal experience. Ask them questions directly, or just listen to the discussion — [...]

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Feeling Guilty

Perhaps you’ve heard of it: Survivor Guilt.  Thanks to Wikipedia for this definition: Survivor guilt, also known as survivor syndrome, is a mental condition that occurs when a person perceives himself or herself to have done wrong by surviving a traumatic event. It may be found among survivors of combat and natural disaster, and in [...]

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Has It Really Been a Week?

A former colleague mentioned by email today that her life is flying by.  Wow, she’s not alone.  I remember the days of daily blog writing and now I’m amazed to witness a week pass by without the opportunity to even visit my own site to review comments or other thoughts and postings. 
Time to stop [...]

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