Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on June 27, 2008 | 4 Comments »
Since I started writing about my Tysabri Travels, I’ve received a number of emails with questions about the drug and its efficacy and side effects. When I visit a number of M.S. discussion boards, one in almost every ten postings is about Tysabri. Folks in my personal life also ask about the drug, how it [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on June 23, 2008 | 2 Comments »
We gotta make this work. This is our dream drug. Our options are really limited. We’ve invested so much research and hope in this direction.
It’s been three days since my first infusion of Tysabri and the hubby and I continue to keep a close watch on both my physical and cognitive conditions – doctor’s [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on June 21, 2008 | 3 Comments »
Trains and railroads have been used as metaphors for decades, especially in music. The Grateful Dead’s songs with references to trains number in the double digits. Trains and railroads represent journeys, leaving sadness behind, seeking greener pastures, and even deliverance. (Why is it I can’t use that word – deliverance – without conjuring up thoughts [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on June 20, 2008 | 7 Comments »
The time has arrived, our tickets are purchased, and now all that’s left is for family and friends to wave to us and wish us luck as the train leaves the station. Today is Tysabri infusion number one for the Ty-Ty Sisterhood!
While I’m excited that today has finally arrived and I’m hopeful for the [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on May 29, 2008 | No Comments »
I’ve never ridden on a train, unless the subway counts, or perhaps the train at the Zoo. I’m assuming that trains have “stops” just like subways. For weeks, I’ve been pulling on an imaginary cord just above my head (“ding, ding”), trying to get my personal train to make its all important first stop – [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on May 16, 2008 | 5 Comments »
Toot! Toot! All Aboard. It’s time to jump on the Ty-Train. And here begins Sunshine’s journey with Tysabri – the drug we’re hoping and praying begins to alleviate the relapsing part of my Relapsing-Remitting M.S., decreases potential disability, and hopefully protects my noggin from future attack across that all important blood-brain barrier.
It’s quite a [...]
Posted in Life with M.S., Treatments, Tysabri Travels, tagged M.S., Multiple sclerosis, Tysabri on May 1, 2008 | 4 Comments »
I said to one of my M.S. friends (and I wonder if she just loves being referred to as an “M.S. friend”, as if that’s any different than any other type of friend) yesterday that I wish choosing an M.S. treatment were as easy as choosing between Tylenol and Advil. It’s not. And, I can’t [...]
